I became a caregiver for my partner when she was diagnosed with non-specific interstitial pneumonia (NSIP) in 2014. She had a nagging cough which had persisted through November and December into January and February. Finally, we agreed: this was not a normal flu or cold cough.
When she came home with the diagnosis, all I knew was that NSIP wasn’t COPD. But it was a serious lung disease causing inflammation of the lungs. We struggled through the early months, getting medicines, changing medicine, and starting supplemental oxygen. She had numerous CT scans and a bevy of doctors; so many that we almost lost count.
The biggest surprise was that the cough persisted and worsened. And then the sputum and mucus became prolific. This is an issue of quality of life. The specialists were sympathetic, but nothing seemed to work for the cough and the mucus. I began to ask. Where are the other people who are living with this disease? Yes, it is rare, but there have to be others. We need to know what they know.
Then, we found PF Warriors.
What We Learned from the PF Warriors Community
It became clear that PF Warriors did know things we needed to know. Things to remedy what doctors really didn’t experience. Like using a full box of tissues in a single day. Or coughing so hard that vomiting was a possibility. Here are five secrets we learned from experienced PF Warriors right away. They have been well worth joining the group.
1. Fisherman’s Friend Cough Lozenges
PF patients’ most often recommended cough drop is Fisherman’s Friend. Advertised as an all-natural cough suppressant, these cough lozenges contain menthol, capsicum, dextrin, eucalyptus oil, natural licorice, sugar, and tragacanth. We have yet to find a better cough drop. We order them by the case. Other cough drops are sometimes recommended, but none as much as these little brown gems.
2. Mucinex Expectorant
Mucinex contains guaifenesin, which is an expectorant and will help thin the mucus, making it easier to clear. Some patients take 600 mg twice a day. We choose the tablet without any pain reliever or decongestant. Please check with your doctor, as you would with any other drug.
3. Honey
Honey may act as a natural cough suppressant. I am now adding two teaspoons of honey to a turmeric tea for my partner to drink morning and evening. My partner has even been known to swallow a teaspoon full of honey to help alleviate coughing and soothe her throat.
4. Stay Hydrated
How often have you heard to drink 8 glasses of water each day? In addition to needing the water for your general health, the water can help clear mucus. Supplemental oxygen can be very drying, so my partner’s doctor has also recommended a cool mist humidifier. While coughing, patients say that room temperature water is better to drink than really cold or really hot drinks.
5. Pineapple Juice
Many patients recommend pineapple juice or bromelain supplements. The research community does not have clear, scientific evidence of its ability to help with cough and mucus.
Important: If you take blood thinners, always check with your doctor before trying pineapple juice or bromelain supplements to ensure they are safe for you.
A Caregiver’s Takeaway
I’ve learned much more about the rare lung diseases that fall under the pulmonary fibrosis category since joining PF Warriors. These five tips are the most valuable advice we didn’t get from doctors or therapists.
What I’ve learned is there are things you can do to make life better while living with fibrotic lung disease. And that is something to be thankful for.
About our Guest Blogger
Kathy P. is a longtime PF Warriors volunteer and caregiver. Since her partner’s diagnosis with pulmonary fibrosis, Kathy has dedicated her time to supporting the community, sharing practical tips, and offering hope to fellow patients and caregivers.
You’re not alone – join PF Warriors to connect with others who understand life with pulmonary fibrosis, and share your story.
Disclaimer
This blog is for informational purposes only and is not a substitute for professional medical advice. Always consult your doctor for medical concerns.