Aug 28, 2026 | Caregiving, Emotional Health
A note before you read: this story includes the death of a loved one from pulmonary fibrosis and honest reflections on grief. If today isn’t the day for it, that’s okay. It will be here when you’re ready. One night in 2014, not long after her partner...Jan 5, 2026 | Emotional Health, Stories of Hope - Patients
By PF WarriorsFeaturing the lived experience of Sean Tully As a new year begins, many of us pause to reflect on what the past months have brought. For people living with pulmonary fibrosis or other chronic lung diseases, that reflection often looks different. It may...Mar 4, 2022 | Caregiving, Emotional Health
Being a caregiver for someone with interstitial lung disease (ILD) is something you don’t understand unless you have lived it. The typical American caregiver is burdened with a role that most are unprepared for. The role can vary from providing emotional support to...Feb 9, 2022 | Caregiving, Emotional Health, Newly Diagnosed
Learning that you have a rare lung disease is shocking, confusing, and just plain frightening. Many people with pulmonary fibrosis (PF) first see their primary care physician because of a persistent cough or shortness of breath. Others learn of their condition after...Jan 12, 2022 | Caregiving, Emotional Health, Newly Diagnosed
Talking to family and friends about fibrotic lung disease can be frustrating. Pulmonary fibrosis (PF) and interstitial lung disease (ILD) are rare and not well known, so many people have never heard of them. What do you tell your friends and family about your health?...
