One of the common predictions you can find on the internet is that people diagnosed with PF have an average life expectancy of two to three years. Where does that data come from? Which disease was it based on, and how do we explain that it doesn’t apply to everyone?
Thank you for that question, that’s a really good one. The most important thing I would say is that this information is dated. It’s not current anymore. That’s old information.
Now, where does it come from? The majority of it comes from the pre-antifibrotic era and is mostly the result of aggregated data from large epidemiologic studies, specifically in IPF.
As I mentioned earlier, with the use of antifibrotics, it appears there’s been a shift, a change in mortality, based on large retrospective data over the last six to eight years. I’ll touch on this more in the latter half of the talk so I can shine more light on it.
I will say, though, that there are currently ongoing studies looking at this exact question in a more rigorous and prospective fashion to help us clarify what the true mortality figures are now.
I can tell you they’re much better, much better than two to three years, but I can’t say more than that until we get more detailed data.
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This video is for informational purposes only and is not a substitute for professional medical advice. Always consult your doctor for medical concerns. No personal recording or redistribution without PF Warriors written permission.