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Anita’s Life After Pulmonary Fibrosis and Double Lung Transplant

Oct 3, 2026 | Lung Transplant, Stories of Hope - Patients

“I Want People to Know You Can Survive” At 72, Anita stays active with Pilates, something she never imagined would become part of her life after pulmonary fibrosis (PF) and a double lung transplant. She started with chair Pilates after her lung transplant and quickly...

7 Things to Know Before Starting Supplemental Oxygen

Oct 2, 2026 | Newly Diagnosed, Oxygen

Most people with pulmonary fibrosis (PF) will require supplemental oxygen, also called oxygen therapy, at some point in their lifetime. If PF is diagnosed very early, oxygen may not be needed right away. Some people may need oxygen only while asleep, during exercise,...

Living with Oxygen: What Everyday Life Really Takes

Sep 25, 2026 | Oxygen, Stories of Hope - Patients

For many people, grocery shopping is one more errand on the list. For Jeannie, living with oxygen means a trip to the grocery store requires careful planning, specialized equipment, attention to her breathing, and several hours from beginning to end. Jeannie lives in...

Learning From Jim: A Sixth Grader’s Look at Life With Pulmonary Fibrosis

Jun 17, 2025 | Advocacy, Stories of Hope - Patients

Jim, a PF Warriors member, recently had the chance to be part of a very special school project. Alexa, a sixth grader he knows from church, reached out to see if she could interview him for a class assignment about respiratory conditions. Jim didn’t hesitate to say...

5 Secrets from Patients Living with Pulmonary Fibrosis

Nov 8, 2021 | Caregiving, Managing Symptoms

I became a caregiver for my partner when she was diagnosed with non-specific interstitial pneumonia (NSIP) in 2014. She had a nagging cough which had persisted through November and December into January and February. Finally, we agreed: this was not a normal flu or...

Recent Posts

  • Anita’s Life After Pulmonary Fibrosis and Double Lung Transplant
  • 7 Things to Know Before Starting Supplemental Oxygen
  • Pulmonary Fibrosis: Why Vaccines Matter
  • Living With Dermatomyositis and Interstitial Lung Disease: Karen’s Story of Answers and Purpose
  • Living with Oxygen: What Everyday Life Really Takes

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